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Thursday, April 30, 2009
MOVING
Thursday,April 30, 2009 Another New Update
Wednesday, April 29, 2009
Wednesday, April 29, 2009 Shailee's Update
Wednesday, April 29, 2009 Newspaper Article
I know you will be able to access today and tomorrow, but i am not sure once it is a couple days old if you will be able to see it or not, but if i can get a different link i will post it as well.
Tuesday, April 28, 2009
Tuesday, April 28, 2009 Today's Updates
Monday, April 27, 2009 Today's Update
Sunday, April 26, 2009
Sunday, April 26,2009 Today and Yesterday's Update
Friday, April 24, 2009
Friday, April 24, 2009 Another Quiet Day
Thursday, April 23, 2009
Thursday, April 23, 2009 A Quiet Day
Wednesday, April 22, 2009
Wednesday, April 22, 2009 A Very Scary Day
Tuesday, April 21, 2009
Tuesday, April 21, 2009 Today's Visit
Monday, April 20, 2009
Monday, April 20, 2009 My Visit With Shailee Today
Sunday, April 19, 2009
Sunday, April 18, 2009 Updates From Our Visit Today
Saturday, April 18, 2009
Saturday, April 18, 2009 Another Day With Little News
Friday, April 17, 2009
Friday, April 17, 2009 Not Alot Of News Today
Thursday, April 16, 2009
Thursday, April 16, 2009 Will Things Ever Start Looking Up?
Wednesday, April 15, 2009
Wednesday, April 15, 2009 Another Not So Good Day
Tuesday, April 14, 2009
Tuesday, April 14, 2009 Shailee's Updates For Today
Monday, April 13, 2009
Monday, April 13, 2009 A Few Changes For Today
Sunday, April 12, 2009
Sunday, April 12, 2009 There Has To Be Some Steps Backward
Saturday, April 11, 2009
Saturday, April 11, 2009 Our Visit To See Shailee
Friday, April 10, 2009
Friday, April 10, 2009 Today's Updates
Thursday, April 9, 2009
Thursday, April 9, 2009 Nothing Too Exciting Today
Wednesday, April 8, 2009
Donation Site
http://www.digitalcharity.com/m.php?id=68909
Wednesday, April 8, 2009 Our Visit Today As Well As More News
Tuesday, April 7, 2009
Tuesday, April 7, 2009 An Uneventful Day
Tuesday, April 7, 2009 Our Family
Monday, April 6, 2009
Monday, April 6, 2009 Another Day And More Waiting
Sunday, April 5, 2009
Sunday, April 5, 2009 Another Visit And More Unwanted News
We met with Shailee's endocrinologist for the first time today, to find out that they are concerned with Shailee's pituitary gland and its ability to produce her body's hormones. He feels that she may have a pituitary deficency. He told us that her Cortisol levels are good, but her thyroid levels are low, and her growth hormone levels are low (they should be between 20 and 40 and hers was 6). He wouldn't give us alot of information at this time b/c there is nothing set in stone with this since she isn't feeding on her own yet and she is getting all of her nourishment from an iv. he is going to do another thyroid level tomorrow, but he will follow her more closely once she is feeding on her own and they are able to see what all her body can do on its own. We were very upset at the intial news of this, but once I got home and did alot of research on this problem i have found that all the deficencies that are or can be caused from this are treatable in one way or another. I just hope that it doesn't turn out to be something that she is going to have to deal with later down the road but it is another time where all i can say is that we will have to wait and see. I really am starting to feel like all i get done doing is waiting and waiting, and it is hard b/c there is nothing that i can do about it, or for our daughter but sit and wait. Right now the main things they are worried about getting taken care of first are her heart and her respiratory issues so she can be off of the ventilator and breathing completley on her own. That is pretty much all there is for today, so now i sit and wait since that is all that i can do. I will update again as soon as i hear more. Here is a new pic of Shailee from today.
Saturday, April 4, 2009
Saturday, April 4, 2009 My Visit To See Shailee
Friday, April 3, 2009
Friday, April 3, 2009 Another Update For Today
Friday, April 3, 2009 A Couple Updates
Thursday, April 2, 2009
Thursday, April 2, 2009 You Take The Good With The Bad
Wednesday, April 1,2009 A Few New Changes
Monday, March 30, 2009 Finally A Little Hope
Wednesday, April 1, 2009
Friday March 27th, 2009 Grim Outlook
The doctors feel Shailee does have Trisomy 13 or 18 due to all her defects. It seems these are all basic signs of this Chromosome disorder. They sent a grief counselor in to speak with me. She asked a lot of hard questions, but the hardest was, do you want to take her home to die or leave her in the hospital to die there. I didn't know what to say, my stomach twisted in knots and I wanted to vomit. Everyone had given up hope on my angel and they wanted me to decide where to let her die. I told them I would need to talk to my wife before I decided anything. And I held on to my hope that they were wrong. I prayed like I have never prayed before and I asked everyone I knew to pray as well. I asked God to let me go in her place, I begged him to let her live and I would do whatever he wanted me to. My baby couldn't die, she hadn't even had the chance to live yet. I didn't tell my wife Stacy anything about the grief counselor yet, she had enough to deal with. She got out of the hospital today and we are going up tomorrow to see Shailee.
Thursday March 26th, 2009 It Gets Worse
When I got there the next day I found things to be even worse, they told me that they felt she had Trisomy 13 or 18. These are both very fatal and nobody should ever have to hear those words when it comes to their kids. They weren't going to do much more than keep her stable until her mom got released and could come see her. The chromosome results would be in on Saturday to let us know for sure if it was Trisomy. Everyones outlook was very grim, they didn't give her a chance. She had a heart problems as well. The left side of her heart wasn't pumping like it should but I whispered into my baby girls ear before leaving to come home that night, and I told her, your a Webster, your strong, and you can prove them wrong.
Wednesday March 25th 2009 Our Angel Comes
This is a where the abdomen wall doesn't finish forming and some of the internal organs are outside the body. The next thing we noticed was a small gap on the left side of her lips. It is basically a cleft but not in the middle like normal. Next it was her left foot that we noticed. It was curved in our clubbed. Then we saw a skin tag near her left ear. To top it all off her heart rate was still racing.At that time the hospital called in for Life Flight to come pick our angel up. Lifeflight was unable to fly in due to the weather but sent a EMS unit to pick her up. After a hour and a half they arrived and transported our daughter to a fantastic hospital north of where we live.