Wednesday, July 1, 2009 Some Updates

Shailee has been up and down the last few days. they have increased her feeds to 84ml every three hours and that is the one thing that she is doing good with. she had one good day with no spells but isn't showing improvement. a few days ago her oxygen was at 65% then up to 75% then up to 80% and now up to 100%. it has been rising and going down a little then rising again. she had 3 bad spells the other night and 1 during the day (that one was b/c she pulled out her trach!!!) last night she had 3 minor spells and 1 bad one today. the spell she had the other day she dropped her oxygen to the 10's and her heart rate to the 90's but she did come out of it without bagging. now today they said that she had blood tinged secretions coming from her trach which they think is coming from her lungs, and they are sounding worse so they feel her lungs are detierating more. the nurse told me even though she is going through all of this she still takes time to stay awake and interact with people. other then these things nothing has changed she is only being given comfort care at this point. I will update more later.