Saturday, June 20, 2009 Updates on Shailee

Shailee is still doing good for the most part. She had her new custom made trach put in yesterday and it fits her nicely. and since the trach has went in, her oxygen percent has been down to 30% which is great compared to what it used to be at. she is in a contact isolation room and you have to wear a gown and gloves if you are going to be touching her b/c right now she has MRSA which is an infection that once you get it you will always carry some form of it, but she wont always have to be in contact isolation, it is only in her nose right now and she isn't showing any signs of being infected at this time but it can spread to the other people and babies there so that is why they put her in her own room so others didn't get it. they are watching it and testing her often to make sure that it hasn't got in her blood which it hasn't so that is a good thing. she is taking 73ml of formula every three hours and she is doing great with that as well. they had us watch a trach care video yesterday b/c they are going to start trainging us to care for her. the home health equipment company came to our house yesterday and checked out the outlets and such in the house to get ready for her equipment that she will need to come into the house. we will also have to do training with the company to learn how to use all of the machines that she will have when she comes home, and she will have quite a few of them to learn how to use. Shailee has figured out how to make small noices by pushing air around her trach pipe but they are very very quiet since her vocal cords are still messed up and b/c not alot of air flow gets to them due to the trach but they said that if she will be able to talk that later when she is older she will be able to cover her trach up and talk. other then that she is doing good and there haven't been any other changes. i will update again when i know some more.