Wednesday, June 24, 2009

Wednesday, June 23, 2009 Bad News

I wanted to update everyone and let you know that Shailee has taken a turn for the worse. she is no longer responding to any treatments and they have done all that they can. she is totally oxygen dependent now and her lungs are beyond repair. she is not holding her oxygen levels well and she is dropping to levels of 1 or 2 and it is getting harder and harder to bring her back and she is having many episodes in a single day. we are going to spend the weekend with her as they don't think that she will be with us much longer. they wanted to put her in hospice and just make her "comfortable" but we don't want that to happen so we are working with the hospital on filing a DNR with Shailee. we don't want her to suffer anymore, and her health is only declining more each day. she has to constantly be sedated and dosed with morphine to keep her calm enough to live and that is not what we want her to have to go through anymore and after seeing her today we can tell a difference in her. she is no longer comfortable and happy. none of us wanted to see it come to this, but it is in god's hands and only he knows what is best for her. i will post again as soon as i have a chance.

15 comments:

Anonymous said...

you are in our thoughts and prayers, and as you said it is all in Gods hands. please know that we are all here for you. May you find comfort and peace durning this difficult time. taimie hoffman-mommy to Alexa-CdC

blimpy33 said...

i am very sorry to hear this.. Bless her heart she has been a fighter through all of this. Its in gods hands now..keep praying and dont lose hope..god works in mysterious ways..God bless you all...Like i have always said..if there is anything i could possibly do to help you..please dont hesitate to call me day or night...you guys hang in there..Brent Bleam and Family

Anonymous said...

Love you, guys. I'm here for you and praying for you. Your cousin, Julie

Anonymous said...

I am so sorry, Our thoughts and prayers are with your family.
Sitara
mom to Ishan CdCs

Anonymous said...

This is heartbreaking to hear. I am so sorry. Know that your family and your sweet baby girl are in our thoughts.
Kristi
mom to Katie CdC

Anonymous said...

I want to let you know that you are in our thoughts and prayers. All of us here are Help Me Grow have been following Shailee's progress. We are saddened by this news. Please let us know if you need anything.

Cindy and Help Me Grow staff

Wyandot County WIC said...

All of us at the WIC Program are including your family in our prayers. We have been reading your blogs to keep up with Shailee. We are sorry to hear this news. Let us know if we can help with anything. God Bless

Kate J in MN said...

Praying for peace in your hearts at this difficult time. So sorry that you are going through this. There are no words sufficient to convey the love and comfort we would like to surround you with.
Kate
mom to Janine CdC

Anonymous said...

Sorry to hear bad news. She has been really fighting hard for awhile. Peace for her will mean peace for your family.I hope you will be able to make it through this hard time. If you need anything let me know.
Charissa
mom to Evin CDC

MaDonna Maurer said...

Praying that God would give you comfort and peace during this time of unrest. Praying for healing for Shailee. Praying that God would give you wisdom and understanding this day.
MaDonna
mom to Matthea CdC

Anonymous said...

I am still praying that God's will be done and that you will get through this. I'm feeling your heartbreak but hang in there. Love and prayers

Jessica Marinaccio said...

Your beautiful baby girl is in my prayers as well as you and your husband. I went thru something similar as well ( losing my babyC) if you need to talk - please don't hesitate to IM me.
God Bless

Anonymous said...

I will pray that God is with you and your family in this very hard time. I know that this has to be the hardest thing that you have ever gone through in your life. Just remember that God is with you no matter what and if he chooses to take her from you it is because he needs her more. I love you like a sister and if there is anything that I can do for you please let me know.

God Bless You
Cindy Parks

Anonymous said...

Stacy,Bill & Kids,
We are SORRY to hear about Shailee!!!!You are all in our thoughts & prayers!!!!We love & miss you very much!!!!!We know this is a very difficult time for you,Bill & the kids and whatever your decisions are regarding Shailee just remember she knows you love her with all your heart!!!We all know this is one of the hardest things in your life that you will ever have to do and may God be with you during this difficult time!!!Please, give Shailee a kiss for us & tell her Uncle Brian & Aunt Lisa love her very,very,very much!!!!!!!!!!!!!!!!!!!!
Love Always,
Brian,Lisa & Boys

Anonymous said...

Stacy,
I am so sorry to hear that Shailee is not doing well. I will continue to keep your family in my prayers. Our CDC kids are Angels sent to us from heaven. We are so blessed to have them in our lives. If God chooses to bring this Angel back to heaven to be with him, please be comforted by the fact that she will be safe and happy in his arms and surrounded with love from others who have gone before her. Peace be with you during this difficult time in your lives.
Tracey Adams
(mom to Colten 13 yrs. )

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