Friday, April 10, 2009 Today's Updates

I talked with the nurses today as well as one of the doctors. Shailee is up to 31 cc's of formula every 8 hours now, and they are still uping her formula the same as they were. And for my mom, who keeps asking me how many cc's are in an ounce, well the answer is 30 cc's is 1 ounce so she is having 1 ounce and 1 cc every 8 hours. which isn't much but it is a start. Shailee has also gained 1/2 an ounce, which once again isn't much but it is better then losing more weight. They told me that all of her lab work is still coming back good. her heart echo results weren't in yet, but they told me that everything must have looked good or they would have changed something or ordered something else, which they didn't do, so i guess no news is good news in this case. I was also told that they drew more blood for chromosome testing because they are doing something called a microaray (not sure on spelling) but she told me that they are basically looking at things on the next level to see if they can find out more information on what the "unknown'' addition is on her 5th chromosome and to make sure that there isn't any other syndromes on top of the cri du chat or to see if they will be able to tell if there could be any other problems that she will face from this. so now we have to sit and wait a couple more weeks just to sit down with the geneticist again so he can give me more bad news, but i guess we will see what he has to say when that time comes. Other then that information there really isn't anything else new on shailee today, but we are going to see her tomorrow eavning so i should have more updates as well as new pics.