Sunday, April 26,2009 Today and Yesterday's Update

Sorry i didn't update yesterday, but we had a busy day here as we had a birthday party for the boys and had alot of people over. But Shailee is still doing good. she is stable, and resting. we went to see her today, but there are no new pictures because i left and forgot my camera. she was uped to 71 cc's of formula today and she is tolerating it well. she is also getting her last dose of the antibiotic today, but she is still very raspy sounding but she is having a chest x-ray tomorrow so they will go from there. she will be having her cast removed tonight and a new one put on tomorrow as well. we spoke with her heart doctor today and he told us that she is making baby steps in the right direction, which is good, and she is improving well. he did say that she will eventually have to have surgery on her heart to close the two holes in her heart, but it isn't something that they are going to do any time soon, they want wait as long as they can because the bigger and older she is the safer the surgery is going to be. Also she has had what they thought to be a diaper rash that is still there after almost a week, well it turns out that it is a yeast infection, which they found out because it is now under her armpits, but they are treating it with a different ointment as well as a powder for under her arms. the robinul is still working well and she isnt' having as many secretions but they are still suctioning due to the fluid that are in her lungs. she is most likey going to come home on the two heart medications and the robinul as well. they are still planning to do the surgery for the g tube and the trach but they have to wait until they are positive that the infection from the pneumonia is totally gone before they will do anything. other then that there are no updates, i will update more tomorrow.