Wednesday, May 20, 2009 Our Visit

Shailee is still doing ok, she is stable. We all got to hold her during our visit, so that was nice, and she was wide awake the whole time we were there! Shailee weighs 7lbs 12 oz now, but she really doesn't look it. they raised her feedings to 62 ml every 3 hours and she is still tolerating them great. they took her off the robinul b/c it wasn't working for her anymore, and they put her on something called atraphine which is an arisol that she gets in her et tube every 3 hours. the surgeons looked at her belly also, and it is compltley healed! so she no longer has to have it wrapped and medicated, and it is open to air now, and she is also going to get 4 hours of tummy time every day now too since it healed up. they will still have to surgically close the abdomin wall, which they plan to do when she is able to get the trach and g tube surgery. she still has pnuemonia and is still on the antibiotic, but she is getting better. her are the pics from the visit.