Wednesday, May 13,2009 Today's Visit

we went to see shailee today, and she is still doing good. she is no longer on the lipids but they are still running a little bit of fluids into her just to keep her pic line open in case they have to us it again, they want to be sure before they pull it out of her completley. she seems to love her crib, and she has all the room in the world in there, and it also makes her look really small compared to the other bed she used to be in. she has a crib mobile that she likes to look at, and they have also found that when she gets irritated that music calms her down so now she has her own little radio in her bed with her as well. we saw her physical therapist today and she said that shailee is still doing good, also told us about the crib gives them more options for different positions to put her in so they are going to be trying out different things now to help make her more comfortable. she is only allowed to have her shoes off for one hour a day, which i bet she loves that hour b/c those things are pretty heavy for a little baby, but they said that her feet are tolerating them well and they are keeping an eye on her skin to make sure that the shoes aren't causing any problems, but so far so good. we also got to see her belly today and there are no open spots on it now, so that is good b/c they said before that if it finished healing up that they would be able to close it when they do the trach and g tube surgery so hopefully once she goes into surgery they will be able to do that one at the same time so they don't have to do a bunch of seperate surgeries. other then that nothing has changed and we are just taking it a day at a time hoping that she will stay infection free for the whole 4 to 6 weeks so that she is able to go to surgery and come home. here are the new pics and i will update again tomorrow.