Tuesday, May 12, 2009 Today's News

Shailee is still doing good. she did have to have some meds to help her relax early this morning b/c she was getting irritated but she is ok now. she is up to 54 ml of formula every 3 hours and is still tolerating it well. they even had her in a bouncy seat today!! she is in a crib now instead of the hospital bed thing, and she loves it, they even gave her a crib mobile to listen to and look at, and they said that she really likes it alot. I also talked to the geneticists office today and they have all of the final reports in and me and bill's cells are normal so this is just something that happened and she didn't get it from either of us. she still has the same diagnosis of cri du chat and hers is a mosaic form b/c she has the deletion and the addtion, there is very little information in a case like hers so they really don't have much to go on, but they did say that the addition is part of her 5th chromosome that duplicated itself but they said that isnt going to affect anything so it isn't going to cause any additional problems for her, but the deletion will still cause problems for her, but there really isn't any way to tell how severe or mild she will be until she starts getting older, so we will have to take it day by day and wait and see how things go. but as of right now she is still doing good and we all hope that she will stay that way long enough to get into surgery so she will be able to come home. we are going to see her tomorrow so i should have some new pics for you then.