Sunday, May 3, 2009 Early Update

Hi, I have managed to be able to get online to update a little early! we went to see shailee today, but i wasn't able to get any new pics today because i haven't located my camera from the move yet. I don't really have alot of good news today, shailee is once again ill. she was running a fever of 102 to 103 today, but they did get it down with some tylenol. they did blood cultures on her and her white blood cell count is high so they said they know she has an infection, but not sure where because they did a chest x-ray and they dont feel that it is pnuemonia, they started her on antibiotics again and they said they are not growing anything in the cultures yet so they are calling in an infectious disease specialist tomorrow to have him look at her and see what is going on and if there is something going on with her immune system. they also had to give her a blood transfusion today because of the infection. they also had to stop all feeds on her because she isnt' digesting it well being sick and it is all coming back out green due to the infection and not digesting, so they had to run an iv today and put her back on tpn's and lipids for the time being. they also had to take her off the robinul for her secretions for the time being since she isn't digesting things well and that isn't something that comes in iv form, so her secretions are going wild now too, but they did give her lasiks today to help with that some. she was very pale looking when we went to see her and you could tell that she just didn't feel good at all, and she didn't want to be messed with at all, but i have spoke to the nurse since she has been given the blood and she said that she has some color back to her, and she was being more active so that is good news. they also stopped the medicated powder for under her arms because the yeast infection cleared up there, and it is almost gone on her bottom as well. the surgeons said that they wont even think of taking her for surgery for at least 4 to 6 weeks after the pnuemonia, and since she is sick again it will get pushed back even longer now, so she is definatley going to be there for a long while yet, but we just have to take it day by day and see where things go. she isn't having a good time right now, but she is a fighter so we will keep hoping for the best. i will update again as soon as i get a chance.